A couple of days ago I sent out an email asking everyone to pray for Jack.
I thought that a medication he was taking was causing him to have hypersensitivies to sound. He had a complete meltdown when a toy he adores sang a song he adores. He sat there in joyful anticipation until the toy started singing.
Once it started, he made the face...if you ever see the face, you'll never forget the face, and you'll never want to see it again. It's the face of shock, of pain, of confusion...the face that occurs just before the gut wrenching, crying until he literally can't breathe and is getting choked on his secretions crying. It's awful and nothing helps. He looks so helpless as he cries out and in between sobs asks you to do things that usually comfort him but nothing helps until he is just exhausted from the effort and finally calms down. But afterward, little things can get him started again and it starts all over until at some point mercifully he gets to sleep.
Since I thought it was his decongestant/antihistamine/antitussive combination causing the problem, I stopped giving it.Turns out that was a bad idea since he actually had an ear infection but now I'm getting ahead of the story....without further ado, I present the Seven Dwarves of Ear Infection.....
This morning, I woke up to seesitting up in his bed waiting for me to help him get his Bipap mask off. He was in an extraordinarily good mood. He was especially giggly this morning as he played with Elmo Live and I realized that he was actually repeating one of the jokes. As we got him ready for school, we practiced the joke so he could tell it to Ms. Sunny when he got to school.
When we arrived, Ms. Sunny and Jack's classmates were sitting together and talking. Jack became
and had trouble getting the joke out but once he did everybody laughed and I heard some of the kids repeating it to each other. (Why is six afraid of seven? Because seven ate nine!)<--Remember, this is 4K. This kind of stuff is still funny to them.
Just before his scheduled lunch time, we got the call from school, Jack started acting
so they knew that something had to be wrong. He is not one of their sleepers.
laid down with Elmo.
He became quite
Diagnosis: Ear Infection
Cause: Constant sinus drip gets pushed back into ears by Bipap if not dried up using medication
Mom's reaction: DOH! What do I do?
That's when I felt
Our sweet family doctor took me quite seriously as I relayed Jack's hypersensitivity Sunday evening. You could tell by the look on his face that he understood and was not about to shrug off Jack feeling that way. He understood the problem too. We discussed the possibility that the hypersensitivity may actually have been caused by the ear infection.
Bottom line is that we really don't know and the only way to find out what is causing the problem is to experiment with different medications and see how Jack reacts. David and I talked it over and since he had been taking the new medication for a full week and a half and Dr. A thinks that it would only take 2-3 days of giving a medication to see a reaction, it was most likely the ear infection causing the hypersensitivity.
So...pray for us as we try to get the ear cleared up and the medicine sorted out.