tag:blogger.com,1999:blog-5835940797892661941.post7044058162780459098..comments2023-10-18T04:40:55.431-05:00Comments on All Access Pass to Jack: How's Jack?Mariehttp://www.blogger.com/profile/16158883265713752481noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-5835940797892661941.post-3494169891533255932009-06-24T18:01:56.541-05:002009-06-24T18:01:56.541-05:00Hi Marie, i have just spent the last hour and a ha...Hi Marie, i have just spent the last hour and a half reading your lovely blog on Jack. I was in tears as well as It was like reading about my own son Samual,who has aperts, he will be 10 on the 4th july. He has speech delays as well,(this was due to him having a trachy tube for 4yrs),sleep apneas,and a few other things that most the kids with this syndrome have Plus a few extra add ons(as i like to call them:))etc. but what touched me about Jack was that he is into the same things Samual is into. Sam hates being in side, loves water, I let him play in the shower during the winter as its warm and I have a all in one shower so it cant be flooded.(unlike the kitchen sink at 530am :))enjoys going the macdonalds for a shake and now after eight years he has moved to wanting a cheeseburger as well. normally has pasta, but thats been taken off the menu here. Last year I was introduced by Sams speech thrapist to a learning programme here in New Zealand which I see is also available in the USA. It's called The Picture Exchange Communication System. and its great, Sams speech has improved ten fold with him using it, and his school also uses it.You might want to ask your speech therapist about it or even your school. I'm happy to send you information on it. it's simple to use, it is pictures of things like symbols of words, example trains, what food he'd like to eat, favourite toy. you can also make sentences with this system, like can i have a cheeseburger please. and it boosts their confidence (although going by the photos and if he's any thing like Sam that wont need boosting :))but it helps them to talk and to communicate with others around them (as they have to say what is on there card to the other person then hand it to them,the other person can then see as well as hear what it is they would like to have or say, then hand it back to the child. the only web site i can locate is the following. www.pecsaustralia.com (I hope this helps). Sam has a page on teeters page Samual Lea. Which badly needs updating i have been a bit slack with this. if you want to see what he looks like. Well I better go got lots to do before school comes out at 3pm, So fron New Zealand keep warm and keep up the great job with Jacks blog site. Tina LeaAnonymousnoreply@blogger.com