Tuesday, February 9, 2010

The Grocery Store--Life is Therapy

New to the Life is Therapy series? Here's a quick blurb to tell you what it's about:

Sometimes we parents can get bogged down in the notion that the teaching of our children must be done by professionals. Parents of children with special needs are particularly vulnerable to this idea since children with special needs often have to learn and develop quite differently than children with typical needs. This series centers around the idea that learning can and does occur most effectively through everyday life experiences at home and out in the community--for children with both typical and special needs.

I've been rolling around this idea in my head since I wrote about how much Jack loves Publix. Then Erin's cute post just reminded me how much kids get from tasks like grocery shopping that we consider quite mundane.

It's very hard to remember that the entire world is new and different to our kids. It's much easier for them to encounter things they've never seen before. Also, because they grow and get taller and a bit more independent at each visit, they see new things or old things from different angles and it is all amazing.

As Jack gets older and bigger (over the wieght limit for most shopping carts), he is being allowed a little more freedom to roam. I used our friendly neighborhood Publix where most of the staff know us as a good testing area for deciding when he was ready to first walk beside and not sit in the cart. It took a few times of trying it before he was truly ready since he would often try to break free and run.

Once he did show enough self-control to follow my safety instructions, grocery shopping became a wonderful time to practice orientation and mobility and physical therapy. With Jack's visual impairment, he is still adjusting to his lack of depth perception so he had to learn to guage the distance between him and any objects in his path and adjust himself accordingly. It is very easy for Jack to see something he wants to get to and develop tunnel vision (as in he only focuses on whatever it is and takes off toward it ignoring anything in his path). In the grocery store, there are other people and their baskets as well as display racks and sometimes stocking boxes to be avoided. Going up and down the aisles has been great for enhancing impulse control as well as remembering to focus on the immediate area to check for people and other obstacles to navigate.

The grocery store also supplies numerous oppurtunities for practicing speech therapy by labeling the many things available in the store. I usually allow Jack's level of interest to dictate the amount of labeling we do. One day I was getting a little frustrated because it appeared that Jack was just rooted to one spot moving his head up and down. After a deep breath, I watched for a moment and realized that he was actually looking at the vegetables but appeared to be trying to find a good angle to see them. When I slowed down, we had a delightful time, looking at, touching, smelling, and labeling the various fresh vegetables--speech therapy, sensory therapy, vision therapy, occupational therapy.

Since we frequent the same store often, we have really gotten to know the staff and they've gotten to know us so it is not at all uncommon for a staff member to come up for hugs and conversation. This is a great time to practice appropriate social behavior. Each time, Jack is more enthusiastic about interacting with the staff. He's actually much more interactive with other customers too. The familiarity of the people and the location makes things a lot easier.

So next time, you dread thinking of taking your kid to the store, see if you can slow down a bit during your shopping and enjoy the wonder that your child experiences. It will take longer to get through the store but I think the payoffs are awesome!




Recent Life is Therapy Posts can be found at:
What Happens at Home
Something Old
Know When to Stop



For more Life is Therapy Posts, check out the left side bar.

Now it's your turn to participate. This is where we share our ideas and stories with one another. We're all in this together.

Monday, February 8, 2010

Not All "Art Projects" Work Out

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So our post this week, isn't your usual kind of craft but hey it's crafty! *Sorry for the blurriness of the photos. My camera phone is having issues or my hand is wobbly--not sure which.

We had a special event to attend yesterday evening so I decided to "sculpt" Jack's hair with mousse and hair spray.
He knew he looked good.

That evening when it was bath time, I discovered something.

Short hair with hair product goes nuts when it gets wet! We decided to have a little fun with all that messy hair product hair. We had it sticking up in various places then I had a brilliant idea!

A Faux Hawk!
 
Or not....
Well, we tried...maybe more hair product next time?

To see other's Magic Marker Monday posts and to link up yourself, click here.

Don't forget to check out the latest Life is Therapy and come back tomorrow to leave a comment or link up with your Life is Therapy moments.

Thursday, February 4, 2010

Impromptu by Request

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Don't forget to check out this week's Life is Therapy.

Wednesday, February 3, 2010

Popcorn is a Sedative

1 am Sunday morning I woke up to the sound--the sound that sets my nerves on fire, makes my heart race, my pupils constrict, and my palms begin to sweat. Jack was crying.

It took him awhile to calm down and then he did NOT go back to sleep. I even made him stay in a dark room and lie down for a couple of hours. I think he really tried but he just couldn't get back to sleep. And that means Mama did not sleep either.

I spent most of the day feeling like this

Jack spent most of the day like this
He happily worked on his symphony and enjoyed his various musical instruments, cars, and books. He was a bundle of energy. I had to find a way to get Jack to relax.
He began to slow down in the warm waters of the tub. He even rested his head on Irish. I thought he might actually fall asleep in there. Suddenly, he hopped out of the tub ready for more activity.

That's when I remembered this

Jack can be so very very sleepy but will not go down without a little snack first.


Yes, I did put him back in the same jammies after the bath. He'd only slept in them and we were not going anywhere. Sue me.

And at last, he began to act a little tired

He gladly accepted the offer of a pillow

And finally


Don't forget to check out this week's Life is Therapy.


Our Budding Maestro--Wordless/ful and Special Exposure Wednesday


He is gifted. He has no models at home. I would love to play a musical instrument but I have rhythm issues. And Dave...well, I think he aspired to play the guitar when he was younger...Jack has a natural gift for music. Percussion instruments were his favorite for the longest time but he has recently branched out to the lap harp, guitar, and keyboard. It's not random banging of the keys either. It's purposeful. He sits there tapping the keys and he'll lean in to listen to the sounds like he's just absorbing it all. It seems that each time he sits at the keyboard he expands his playing a bit. Maybe he's composing his first symphony?

Click for more Wordless Wednesday, Wordful Wednesday, and Special Exposure Wednesday posts.

Don't forget to check out this week's Life is Therapy.

Monday, February 1, 2010

Gotta Know When...

New to the Life is Therapy series? Here's a quick blurb to tell you what it's about:

Sometimes we parents can get bogged down in the notion that the teaching of our children must be done by professionals. Parents of children with special needs are particularly vulnerable to this idea since children with special needs often have to learn and develop quite differently than children with typical needs. This series centers around the idea that learning can and does occur most effectively through everyday life experiences at home and out in the community--for children with both typical and special needs.

Who doesn't get excited when a child surprises you with a new skill? And what kid isn't excited to learn a new skill? Most of the time kids are pretty excited to show off their new skills and we (their parents) are very excited to see them do it and will ask them to do it again repeatedly.

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Jack has recently begun jumping with two feet off the ground. He was joyously jumping one evening and I was, of course, excitedly encouraging him. He did this over and over and over again. When suddenly I remembered that I needed to get it on tape so that I would be able to use it on the blog in order to preserve this precious moment for posterity.

When I reviewed the tape, it reminded me of something very important. Sometimes you gotta know when to stop asking for more more more more. Jack WAS having fun jumping and had been having fun jumping. Then I got the camera out and wanted him to perform even MORE so I could show off so all of you could delight in his accomplishments too because I knew that he would enjoy watching himself on video later. But really when the new skill is getting old or your kiddo is just plain old tired, give it a rest. The skill is not going to go away overnight and they'll be much more willing to do a repeat if you don't wear them out. So just remember, if it's not fun anymore and it's just a performance try backing off. You will get to see it again. Just give it a little time.

Jack's still jumping and getting better at it all the time. I'll get more video of it later when he's in a jumping mood!

Recent Life is Therapy Posts can be found at:
Going to the Movies
What Happens at Home
Try Something Old
For more Life is Therapy Posts, check out the left side bar.

Now it's your turn to participate. This is where we share our ideas and stories with one another. We're all in this together. Let's laugh together, motivate one another, and stimulate each others ideas. If you have a blog, create your own "life is therapy" post and link to the specific post in the Mr. Linky below. If you don't have a blog just leave a comment with your life is therapy story.

GHOST!

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It's an oldie but goodie! Jack made this ghost back around Halloween.

He made it a school. It's one of the crafty things his sweet teacher has them do. It's tissue paper that was folded over then a tie was added to make a head and then the bottom was left loose to form a body.

Jack loves this little ghost. When they sent it home from school, I initially hung it in the car next to his uber safe booster seat. He loved having it there and would say, "Ghost, ghost!" as he batted it around.

I guess Jack's real contribution to the ghost was it's face.


He seems to like red.

So, of course, the ghost was one of the first things I put up on the new craft wall I designated for Jack. In this shot, you get a two-fer--Jack colored that bear really well after I added some wiki-stix to help distinguish the border.


To see other's Magic Marker Monday posts and to link up yourself, click here.

Don't forget to check out the latest Life is Therapy.

Friday, January 29, 2010

Open Ended Questions

According to Wikipedia, a closed-ended question "is a form of question which can normally be answered using a simple "yes" or "no", a specific simple piece of information, or a selection from multiple choices."


Dictionary.com defines open-ended as "allowing for a spontaneous, unstructured response".

Open ended questions are a big deal for preschoolers. Give it a try. Ask a little person you know "what is your favorite store?" And then ask why it's their favorite. They may stare at you blankly or give you a completely nonsensical even fantasy-like answer. It takes a lot to think of the question you asked and then to think of what the answer might be. Particularly because preschoolers are still at the stage of wanting to make you happy with the right answer. So not only are they trying to think of the name of a store, trying to figure out whether or not they like it, they are also looking at you and trying to determine what answer will make you happy.

Contrast that with "Do you like Wal-Mart or Publix?" You'll get your answer a whole lot quicker but if you move on to the why question which is open ended you are back at the blank stare or nonsensical answer.

It reminds me of a scene in Elmo Loves You. A little girl says to Grover, "I love you!" Grover says, "Really, what is love?" She says, "Huh?" and kind of looks away. She does eventually answer. It's not that she doesn't know what love is or that she did not mean it. She just doesn't know how to explain it.

So anyway, it's a big deal and guess who surprised his Mama and Daddy by answering two open-ended questions that were on his preschool homework assignment?

Jack! Yes, Jack!

M: Hey Jack, what is your favorite store?
J: Publix!
M: Why is Publix your favorite?
J: Drive cart.

I love love love love love love how much he's communicating these days. If you don't understand his spoken language he will use signs, other spoken words, body language or he'll try to show you some other way what he is trying to say. Good times...

Don't forget to check out this week's Life is Therapy.

Thursday, January 28, 2010

Update from the Eye Doctor

Jack had his 6 month check up with Dr. Cogen. The good news is that his optic nerves appear unchanged. His prescription for his glasses have also not changed. Dr. Cogen told us again that he is mostly prescribing the glasses to protect Jack's eyes to preserve the vision he does have.

Dr. Cogen told us that Jack's optic nerve atrophy is "grade 4" and at this stage of atrophy his optic nerves will not swell. He said that there would have to be dramatic changes to the optic nerves for him to be able to see a difference with the naked eye. This kind of takes out one avenue of assessing intracranial pressure (pressure in Jack's head) between MRIs.

Our biggest indicator for pressure changes now will be neurologic signs and symptoms that Jack may exhibit. Fortunately, Jack is more active than ever and he communicates more everyday. This will make it easier to notice neurologic changes.


We'll continue regular follow ups with Dr. Cogen so that he can monitor the optic nerves for any major changes and also to regularly assess for problems that are emergent but may not be readily obvious since the usual symptom would be loss of vision--something that would be hard to assess in Jack.

Don't forget to check out this week's Life is Therapy.