Thank God and All of You

When I shot this video, Jack had been asleep for about 40 minutes. It's now been almost an hour and a half and he still doesn't need the Bipap yet. It's been weeks since he's been able to sleep at night for more than 30 minutes without the Bipap. Thank you so much for all your prayers. Our God is an awesome God!




Don't forget to check out the latest installment of Life is Therapy.

Snapshots of Sleep--Not completely Wordless Wednesday

Doesn't he have cute PJs?

1st the pulse oximeter is attached. It tells us how much oxygen is getting to his body tissues.

Command center--The machine on the left toward the head of the bed is the Bipap AVAP. Then on the little shelf is at top a clock radio, second shelf all too important puffs plus, and bottom rack the pulse oximeter display. It's not on yet so you can't see anything.

All hooked up

A picture of our rigged up headgear before we connected the Bipap tubing.

For other Wordless Wednesday and Special Exposure Wednesday posts, click on the respective phrases.

Going to sleep ain't easy

Poor Jack may have developed a fear of going to sleep. I think he knows we are going to put stuff on him while he is asleep and he really does not like waking up with a mask on his face and a pulse oximeter on his finger or toe. He had the hardest time getting to sleep tonight. Took about an hour and he was so tired. I know that I'm doing the right thing by being very diligent about getting the CPAP positioned correctly and getting it on him BEFORE he gets too deeply asleep and has an apneic episode. That does not make it any easier when your baby is crying.

I try so hard to be attentive to Jack's wishes as well as his needs but it's a very hard tightrope to walk. I feel like God has planted motherly wisdom in me somewhere and sometimes little parts of it eek out and I know what to do but so much of the time I can't hear it because of all the conflicting noise that I hear on how to raise a child "right." How/when to get the CPAP on is just one more of those things on the list of things I had no idea I would need to know as a mother.

Third times a charm

So Jack is currently getting his third trial of CPAP at home. He got unusually sleepy and even came in from OUTSIDE to take a nap. I had trouble getting that other cap on him. Basically, he became hysterical and I was having heart palpitations trying to keep the mask on and calm my sweet baby so we just called it quits. I got him calmed back down. After he was asleep, I decided to try the other type of head attachment they used in the sleep lab. It was much easier to get on him and Jack is resting comfortably now for over 30 minutes. 30 minutes used to be a long nap for Jack. I just hope that he does not nap so long now that he wants to be up all night!

Beginning the blog

First post! I'm excited. Jack is doing more independent walking. Now he is not just walking back and forth between Mommy and Daddy. We got him to walk from the bedroom down the hall to the office. There were a few starts and stops but he did it! He is amazing!!!

(Notice the t-shirt says "I do all my own stunts")

Last night was our first night on CPAP at home and we think that it went pretty well. By this morning Jack was already tolerating it much better. He actually touched it without trying to take it off. We need to tweak the settings a bit to keep him from getting so dry. We slept much better here at home than we did in the sleep lab.