Tuesday, March 16, 2010

Spring Break

New to the Life is Therapy series? Here's a quick blurb to tell you what it's about:

Sometimes we parents can get bogged down in the notion that the teaching of our children must be done by professionals. Parents of children with special needs are particularly vulnerable to this idea since children with special needs often have to learn and develop quite differently than children with typical needs. This series centers around the idea that learning can and does occur most effectively through everyday life experiences at home and out in the community--for children with both typical and special needs.

It's Spring Break in our local community. This week, I'm just encouraging you to go be silly with your kids.

Later, when you reflect on the silly fun you had, you may realize just how many "Life is Therapy" moments you had. Come back and tell me about them! Get out there!

Recent Life is Therapy Posts can be found at:
Boring is Good
Just Snuggle
Get Your Boredom Going



For more Life is Therapy Posts, check out the left side bar.

Now it's your turn to participate. This is where we share our ideas and stories with one another. We're all in this together. Let's laugh together, motivate one another, and stimulate each others ideas. If you have a blog, create your own "life is therapy" post and put a link to your post in your comment. If you don't have a blog just leave a comment with your life is therapy story.

Sunday, March 14, 2010

Sensory Experience with White

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Remember Ms. Denise's color plan? Jack has moved on to white.....he's not enjoying it quite as much as black. Here's Ms. Sunny getting Jack to play in shaving cream. I don't know where Ms. Denise was for this shot.



To see other's Magic Marker Monday posts and to link up yourself, click here.

Friday, March 12, 2010

Safety FAIL

You know how we are super uber safety conscious 'round here?

umm......
Please remember that the "chest" clip is what keeps your child from flying out of his 5 point harness and it belongs in the super safe zone about level with the arm pits. And moms, if the family is in a hurry and Dad helps Junior into the car, check the car seat before you snap your cute picture of riding off to visit friends.

For more Friday FAILs, click here.

Thursday, March 11, 2010

How to Get the Perfect Posed Shot

Back in December of last year, I gave a tutorial on How to Get the Perfect Group Shot. So many of you laughed uncontrollably over my lack of skills found my tutorial to be helpful so I've decided to help you with another lesson. Today, we'll talk about capturing the perfect posed shot.

Step 1: Seat subject in front of lovely background and get him prepared for the shot.
*ahem* Prepared for the shot?
Alrighty then!
Step 2: Snap your lovely picture.
Uh....focus? Did I forget to mention focusing the camera?

Eh....if subject looks up at camera while sitting in front of lovely background and you've got him in focus, just snap the picture, his shirt got dirty before the photo session so you know you weren't going to send it out anyway he's so adorable he looks great smiling or not!

Tuesday, March 9, 2010

They made us do it!

Each week, Jack's class has a theme. Each day, he has to bring in an item related to the theme. Tuesday's assignment was to bring in a fast food wrapper. What were we to do? It's homework, after all!
Click for more Wordless Wednesday, Wordful Wednesday, and Special Exposure Wednesday posts.

Go see yesterday's post to learn how you too can have a boring life!

Heavy Heart

I've been in a bad mood all day. Everything irked me. The world just seemed off kilter and I've been mad about it. There were brief moments today when I realized that I was sad. It's the weather. I miss the sunshine. That's what I told myself. But no, it's just that my heart is heavy.

A little boy named Isaiah died early this morning/late last night just before I went to bed. I've never met him or his family but I'd been praying for them after some friends alerted me that he was not doing well and was in the hospital.

Now I pray for his mom and dad and my heart aches for them. Could you pray for them too?

You Too Can Have a Boring Life!

I know it seems like just a dream but you CAN make it happen for you! But first, the intro....
New to the Life is Therapy series? Here's a quick blurb to tell you what it's about:

Sometimes we parents can get bogged down in the notion that the teaching of our children must be done by professionals. Parents of children with special needs are particularly vulnerable to this idea since children with special needs often have to learn and develop quite differently than children with typical needs. This series centers around the idea that learning can and does occur most effectively through everyday life experiences at home and out in the community--for children with both typical and special needs.

Two weeks ago, we talked about how Boring is Good. Since then, I know you have all been scratching your heads wondering just how completely crazy I am why David and Jack put up with me how you might make life a little more boring for your family. I came across this blog post that showed an awesome organizational system for keeping the house a bit tidier but also letting everyone know what to expect next.

It actually inspired me to get out some old picture cards that I made a LONG time ago that Jack did not really respond to much.

In the first column, there are pictures that illustrate time to potty (told you these were old), time for night night stories, and time for medicine. The next column is time for teeth brushing and time for bath.

Now that he is a bit older and better able to focus, it seems that the cards help him to process my verbal instructions regarding what comes next. I keep the cards in a little folder and just pull out the one that represents the next activity. They could also be used to create a visual schedule as Jenn did in her guest post on Raising Memories.

Picture cards can also be used to aid your child in making choices. For instance, if you are giving your child the choice between playing with play-doh or coloring, you could present him/her with a card with a picture of play-doh and a card with picture of crayons. The visual representation along with your spoken words may help your child process exactly what his/her options are. This choice making method can also help you to better understand a child who is in the early stages of talking or has some other reason that he/she is difficult to understand verbally.

You don't have to make your own cards. There are a few sites on the internet that have ready to print images. Heather Lynne mentioned All About Me. There's also Do2Learn, English4Kids, and Teach Children ESL. Don't be intimidated by the fact that these sites mention autism and foreign language speakers, the cards can be used for whatever purpose you have in mind.

Go check out the sites and have fun creating your boring life!

Recent Life is Therapy Posts can be found at:
The Grocery Store
TV is NOT the Enemy
Boring is Good
Just Snuggle
For more Life is Therapy Posts, check out the left side bar.

Now it's your turn to participate. This is where we share our ideas and stories with one another. We're all in this together. Let's laugh together, motivate one another, and stimulate each others ideas. If you have a blog, create your own "life is therapy" post and link to the specific post in the Mr. Linky below. If you don't have a blog just leave a comment with your life is therapy story.

Monday, March 8, 2010

Jack's Book of Black

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I mentioned a couple of week's ago that Ms. Denise (Jack's itenerant teacher) put together a plan to teach Jack his colors so that we could distinguish whether he was color blind or just doesn't know his colors yet.

The first two week's focus color was black. Ms. Denise created this nifty book for Jack.
She brought it to school and had him help her finish the last page.

It was patterned on the Brown Bear What do you see? book series. She made it very tactile with black feathers and black forks and made it interactive by having Jack do the last page. Great work, Ms. Denise!

To see other's Magic Marker Monday posts and to link up yourself, click here.

Thursday, March 4, 2010

There's More to Our Story

It has been a tiring, stressful week in the All Access Pass to Jack household. We thank you so much for your prayers and support. Jack did not vomit again last night and he settled into a restful sleep a little after midnight. He did not wake up crying any after that.

Apparently, Jack's recent stomach virus has temporarily (we hope) slowed down his ability to move food through his stomach resulting in nighttime vomiting. And he has a viral sinus infection and another ear infection.

This morning, he was a little irritable but he's usually that way when he has a new ear infection. He was fine after a little motrin. He went to school today. Ms. Sunny reports that he spent most of the day laughing. Ms. Denise was happy to report that he identified mini oreos as the black cookies.

Jack has had several rough nights from the vomiting that have left his parents completely exhausted. Children, however, bounce back from exhaustion a lot quicker. We were too tired to think of anything else wanted Jack to see what other children do when they are not at school so we let him watch a few You Tube videos. He has recently developed a fascination for little Ali so we watched her You Tube videos a few times. He was fond of her rendition of the ABC's but the Alabama Tutorial really got him moving.

 

It's 10 pm and Jack seems to be resting well and has not vomited. We are praying for a restful night's sleep. Good night!

Wednesday, March 3, 2010

We really just don't know....

I wanted to be witty tonight. I wanted to do a post Grasping for Objectivity-style that would make you chuckle about our doctor's visit today but my baby my sweet sweet baby just threw up again. And tonight it was much more than he threw up the past two nights. This was food that he ate 7 hours ago. It doesn't make any sense....and he keeps waking up crying. He just doesn't do that and of course I'm worried that maybe it's his head...please just pray.

Tuesday, March 2, 2010

Home Made Sinus Remedies

Even before Jack's stomach flu began, he's been having increased secretions and difficulty breathing at night due to that ever changing barometric pressure. Our family doc suggested Breathe Right Strips. I told him that I figured the concept would work but reminded him that Jack (who was not present) had an unusual nose and the Breathe Right Strips just didn't do their thing on him. "No problem," he said. He put his fingers on my face and showed the effect I was trying to create and said, "Just use band-aids." David laughed at me when I did this but it worked!


My bloggy friend Sheila also sent me these great tips from her Wellness Blog. I'm going to try these too (on me and Jack).
Click for more Wordless Wednesday, Wordful Wednesday, and Special Exposure Wednesday posts.

Don't forget to check out this week's Life is Therapy where we take a break for snuggling and last week's Life is Therapy where I tell you why boring is good.

Just Snuggle

New to the Life is Therapy series? Here's a quick blurb to tell you what it's about:

Sometimes we parents can get bogged down in the notion that the teaching of our children must be done by professionals. Parents of children with special needs are particularly vulnerable to this idea since children with special needs often have to learn and develop quite differently than children with typical needs. This series centers around the idea that learning can and does occur most effectively through everyday life experiences at home and out in the community--for children with both typical and special needs.

If you follow me on Facebook or Twitter, then you know that we have been bombarded by virus after virus after virus this season. We don't seem to get over one before another has started. Some are mild and we rock right along and others just knock us down.

The latest virus is of the knockdown variety but I'm glad to be getting some relief from today's trip to the doctor so that I am able to put up the weekly post.

This week I want to remind you what's most important about Life is Therapy. It's about the connection. The more you are connected to your kiddo, the more you can enter his/her world and see what interests them and use that to teach them skills they need for the world around them. And sometimes having that connection means it's time to drop everything, throw a blanket and some pillows on the floor and just snuggle....

*Yes, he is so tall that his feet reach down to my knees but when he is sick, he thinks he is still just a tiny baby* laying on his Mama’s chest. *Yes, I am aware that he was never a tiny baby.

Recent Life is Therapy Posts can be found at:

Boring is Good
TV is not the Enemy
The Grocery Store
For more Life is Therapy Posts, check out the left side bar.

Now it's your turn to participate. This is where we share our ideas and stories with one another. We're all in this together. Let's laugh together, motivate one another, and stimulate each others ideas. If you have a blog, create your own "life is therapy" post and link to the specific post in the Mr. Linky below. If you don't have a blog just leave a comment with your life is therapy story.

Monday, March 1, 2010

Praises During this Small Storm

Jack threw up again sometime last night/early this morning. It's all a blur sometimes. The scary thing is that we did not wake up immediately when it happened. It seems like God usually jolts me awake for these things. But no worries God had his eye on Jack as usual and Jack was laying facedown when I woke up. ***Stop reading here and skip down to the last few sentences of this paragraph if you have a weak stomach.*** I know this is a little graphic but I just want you to know how much God takes care of our little guy. Jack was lying facedown and that caused all the vomit to exit the mask into the Bipap tubing so he did not breathe it in and cause lung damage. Our God is an amazing glorious God who deserves oh so much more praise than I will ever give!!! Anyway I don't know how long he laid like that before I woke up and turned on the light to check on him because I realized something was odd (yet another praise because I was really very sleepy and was just going to turn him over but something (shout out to God!) made me turn on the light first). Anyhow, I turned on the light and was getting him cleaned up when he began vomiting again and much more that time. He refused to eat all day and David said he was pretty lethargic until I finally dragged back home. He perked up a little when his biggest playmate and snuggly comfort item (ME!) arrived. He did eat a little dinner (some cereal and fruit bars--his choice). He's been asleep for a couple of hours and he has not thrown up yet. Pray pray!


Dave is feeling okay. He says he's feeling better since he's at home where he has his medications (Mucinex and Sudafed) and remembers to take them.

I had to work today while my brain tried to knock its way out of my skull little by little. I went to the doctor this afternoon. He says that my neck and shoulder pain were most likely the precursor to me getting sick. He says it's yet another viral sinus infection to be blamed on the ever changing barometric pressure. He gave me a shot to decrease the inflammation, particularly my throat and gave me some other meds and praise the good Lord, meds for my head to quit pounding. They are working.

Under the Weather Rewind

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We're under the weather here so we could sure use some prayers. Jack appears to have the stomach bug that's been going around and another cold. David has yet another cold/sinus infection. Marie is having severe neck and shoulder pains leading to a headache as well as a severely sore throat and ear pain.

On to today's MMM....
I have mentioned numerous times how much I love finger art. No surprise that this litte beauty meant so much to me!



Jack made this last year toward the end of the school year. The aide who helped him reported that at first Jack resisted because he does not like the feel of finger paint. After they told him it was a special surprise for Mama, he happily cooperated.
 
It now hangs on a kitchen cabinet and makes me smile everyday!
 
To see other's Magic Marker Monday posts and to link up yourself, click here.

Thursday, February 25, 2010

I knew I forgot something...

Scary icicles over at Ma Vie Folle reminded me what I had promised to post and completely forgot. The SNOW. We had real stick on the ground snow a couple weeks ago. I'll just let the pictures tell the story.


















*Wow! I'm looking back over these pictures and having another one of those "Was I just not paying attention?" kind of moments! Jack is signing "wind" and "snow" in these pictures.

Wednesday, February 24, 2010

Sometimes we both cry....

I hope that my wise, sweet husband and amazing father to Jack is right. Jack was just really tired tonight. In retrospect, I'm pretty sure that he is right.

Jack cried that he wanted to watch more you tube videos but it was bath time and I cajoled him to the bathroom with the offer of a piggy back ride. But we got there and it all fell apart. He wanted to take a bath. He wanted Irish. He did not want to take a bath. He wanted to take a bath. He was all done. He took his socks off but cried about getting out of his shirt. He did not want to use the bathroom. He did not want to put on his PJs. He wanted Mama. He wanted Mama to go away. He wanted to sit on Mama’s lap. He wanted Mama to go away.

My mind whirled. What do I do? He will live if he doesn’t get a bath tonight but wait! If I let him skip this bath will it teach him that he can throw a fit and get out of doing things? Is this a fit? Is something wrong? Is he stressed? What does he want? I wish I could understand everything he says. What does he want? Does it matter what he wants? He needs to get to bed. He’s so upset. How will he get to sleep? Is something bothering him?

I finally got him calmed down and got him into bed. He drifted off to sleep and the evening routine of keeping him breathing while asleep began. Then Dave brought the mail and there’s a letter from the school. It’s time to figure out if he should go to kindergarten next year. It’s time to plan his goals for next year.

Jack’s oxygen levels began to drop. We propped him up on pillows. He coughed and sputtered from the ever present night-time secretions. He tossed and turned and rolled off the pillows.

My mind whirled. Should we give him Afrin? How many days has it been since his last dose? Why is he having such a hard time these past few nights? Should we go ahead and put the Bipap on? Is he recognizing the color black? Should we take a step back from potty training for a bit? Does he need B12 supplementation? Is he stressed out? What was he saying earlier tonight?

And I cried a hard cry like I have not had in quite a while. And I prayed. I prayed and cried. I am overwhelmed and I do not have the answers. I don’t even have all the questions yet. As I cried and prayed sitting there next to Jack’s bed, I remembered what I believe. I don’t have to have the answers and it is not all dependent upon me. God has a plan for Jack that I cannot begin to fathom. I will not always understand God’s plan and it will not always seem fair to me but that does not make the plan any less good.

Tuesday, February 23, 2010

The Blank Stare--Word(less/ful) and Special Exposure Wednesday

Compare this


with this


.


Obviously, it's the same kid. Look again. What are your impressions? If this is your first time here and you've never met Jack, heard about Jack, or read about Jack, that first picture gives a much different impression than the second picture.

The second picture shows a child who is engaged with the world around him. He's looking at something. He is reacting to something.

But what about that first picture? He is not looking at anything. His facial expression is somewhat blank. He does not appear engaged with the world around him. He just has a blank stare.

Jack has this look. It's hard to get on camera because I'm never thinking about the camera when I see it. I went back through several months’ worth of pictures to find that first one and it doesn't capture the look completely. The look is a blank stare. You might describe it as staring off into space--like his eyes are open but he does not see anything.

Often he is very engaged with the environment around him when he does this. He is just not engaged visually. He may be listening intently or tactually exploring.

Have you ever seen a video of someone who is wandering about in the dark before their eyes adjust? That’s the look!

I worry a bit because the look might make some people jump to conclusions regarding Jack’s intellect. At first glance, he might appear to be completely disengaged from the world. It takes effort sometimes to pay attention and figure out just what he is paying attention to.

It’s difficult to explain to people that Jack doesn’t always use his eyes. But that’s what it is. If I had his vision, I hope that I would find other ways to explore my environment too. Still, he’s not fully blind so to treat him as if he was totally blind makes no sense. He has vision and he uses it. He doesn’t have good vision though so it doesn’t make sense to treat him as if he can see the world like most of us. AND it’s hard to know just exactly what he can and cannot see. It’s hard to know if he is not using his vision because he really can’t see something or if he has just adapted to not using vision that is blurry/unfocused.

Back in this post [editor's note: How ironic! That post was written one year ago today.], I said that I cannot wait until we’re on the other side of Jack’s vision issues and have things figured out. Well, we’re still on this side of figuring things out. I’m not crying for the lack of vision anymore but we still don’t have a solid plan and I still feel like we’re fumbling around in the dark trying to figure out what part his vision is playing in Jack’s overall development and what we should or should not be doing as far as adapting his school work and his environment.


Do you know someone who is legally blind and has vision of 20/300 at best? I’d love to hear from someone who sees like Jack sees.

Don't forget to check out yesterday's Life is Therapy post where you can learn why boring is good and link up your own Life is Therapy post.


Click for more Wordless Wednesday, Wordful Wednesday, and Special Exposure Wednesday posts.

Boring is Good

Nobody likes to do the same thing day after day after day, right? No, wrong. We'll get to that in a minute. First, the intro....
New to the Life is Therapy series? Here's a quick blurb to tell you what it's about:

Sometimes we parents can get bogged down in the notion that the teaching of our children must be done by professionals. Parents of children with special needs are particularly vulnerable to this idea since children with special needs often have to learn and develop quite differently than children with typical needs. This series centers around the idea that learning can and does occur most effectively through everyday life experiences at home and out in the community--for children with both typical and special needs.

Children actually do love to do the same things over and over again in the exact same way. That's why many, many parents complain that their heads will explode if they have to watch [insert friendly TV character from kids show] ever again. It's the same reason that night after night after night, kids choose the EXACT SAME book to be read as a bedtime story. That's why they ask you to read the book AGAIN as soon as you finish.

But this is so boring! Why? Why do they do it? Are they trying to drive us nuts? Make us go crazy? Yes! It's all a plot that they have all devised to bring us parents down so they can take over and eat all the candy they want. Of course not. Children just like to know what to expect. As adults when there is so much mundane routine to life, it's hard to remember that everything is new to children. They are constantly bombarded with new information and new abilities that they did not know they had.

Routines, repetition, and sameness give their world stability. When you are reading Brown Bear, Brown Bear what do you see for the fortylevenmillionth time, your child knows the next line is I see _________ looking at me. It's comforting. It helps them to feel confident that there are some things about this great big world that they do know.

AND when your child is able to draw upon that confidence, you will see them dare to do a little more.

For instance, Jack is a late talker. At 4.75 years old, he talks in mostly two to three word phrases with occasional longer phrases thrown in. But when mealtime comes, he can say an entire 22 word prayer with very little prompting/assistance. In fact, he begins by telling everyone to put their hands up, hands down, hands together. I know, "It's a miracle!" Well, yes, but it's a miracle brought about by the God given gift of routine. We say the same prayer the same way at EACH meal and it is the same one that they use at his school. Because David and I followed the school's lead and used their prayer, Jack was able to know what to expect at each meal. He ventured out a little at a time growing confident with each attempt and as the routine continued he said more and more until he did the whole thing. He even lead our small church in prayer one Sunday evening. He needed a little more prompting that time because it was a bit out of the norm but the prayer itself was so routine for him that he was able to apply it to the new situation.

So the next time, you think your head might explode by your child's insistence on doing something exactly the same way AGAIN remember he/she has a great big world to learn about and this is one way of making it all manageable.


Recent Life is Therapy Posts can be found at:
TV is NOT the Enemy
The Grocery Store
Know When to Stop

Now it's your turn to participate. This is where we share our ideas and stories with one another. We're all in this together. Let's laugh together, motivate one another, and stimulate each others ideas. If you have a blog, create your own "life is therapy" post and link to the specific post in the Mr. Linky below. If you don't have a blog just leave a comment with your life is therapy story.

Sunday, February 21, 2010

Back in Time for the Circus!

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Last week, at Jack's school, they had a circus theme. They made cute clown masks.


Some of the kids' masks were a little more elaborate than others. I was really proud to see all the coloring that Jack did on his mask.
To see other's Magic Marker Monday posts and to link up yourself, click here.

Last week's Life is Therapy asked you to re-think how you "view" tv. You can check it out here. There are more Life is Therapy posts listed in the left side bar.

Wednesday, February 17, 2010

Will Return Monday, February 22, 2010

Do not be alarmed. We are experiencing technical difficulties here at Jack's house and will be taking a short hiatus to sort out the difficulties and get caught up on work and home stuff that has fallen behind due to these technical glitches and the time it takes to fix them.

In the meantime, please pray for Jack to get rid of this persistent ear infection. He is on week 2 of his oral antibiotic after we learned that the bacteria does not respond to the ear drop antibiotics he was getting. And on top of that, he has managed to catch a cold. His nighttime breathing continues to be well managed with his Bipap AVAP, Afrin, and his antihistamine/decongestant combination. Thanks for checking in and we'll see you back here next week!

Check out the left side bar for our Life is Therapy Series!